Together In Parkinson's | Navigating Young Onset Parkinson's: Life, Career and Family ft. Matthew Lu

Navigating Young Onset Parkinson's: Life, Career and Family ft. Matthew Lu

In this episode, Matthew Lu shares his journey with Young Onset Parkinson's Disease, discussing the challenges of diagnosis, coping mechanisms, and the importance of community support. He highlights the role of adaptive technologies and holistic treatments in managing symptoms as well as the impact of Parkinson's on family dynamics and social interactions. Matthew emphasizes the need for awareness and connection among young individuals facing this condition, offering advice for those newly diagnosed and advocating for a supportive community.

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Chapters

00:00 | Introduction to Young Onset Parkinson's

02:52 | Matthew's Diagnosis Journey

06:08 | Coping Mechanisms and Community Support

09:03 | Navigating Daily Life with Parkinson's

12:02 | Adaptive Technologies for Parkinson's

17:12 | Holistic Approaches to Treatment

20:02 | Building Community and Support Networks

Takeaways

• Matthew was diagnosed with Parkinson's in high school.
• Young onset Parkinson's is increasingly recognized.
• Coping involves community support and personal research.
• Mindfulness helps in managing daily tasks.
• Adaptive technologies can significantly aid daily life.
• Holistic approaches, including exercise and supplements, are beneficial.
• Communication is key in relationships affected by Parkinson's.
• Building a community for young people with Parkinson's is essential.
• Matthew encourages others to push themselves while being kind to themselves.
• The journey with Parkinson's requires tenacity and perseverance.

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About Matthew Lu

Matthew Lu is the youngest board member at Parkinson's Resource Organization (PRO) and was diagnosed with Young Onset Parkinson’s (YOPD) when he was still a teenager. Matthew was misdiagnosed with Essential Benign Tremor and was told he could manage it with a glass of wine. As a teenager, Matthew noticed that after playing sports and exerting his body, he would be shaking and have a tremor. This prompted him and his mother to seek a second opinion, after which he was diagnosed with YOPD. Today, Matthew focuses his efforts into raising awareness and creating a supportive community for those who are diagnosed or in the process of being diagnosed with YOPD. Matthew also contributes articles to Parkinson's Resource Organization's monthly newsletter: Newsworthy Notes.  His articles focus on assistive technology and hacks for strengthening his body.

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