GAY, AGING, AND LONG-TERM CARE · Parkinson's Resource Organization

GAY, AGING, AND LONG-TERM CARE

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The Palm Springs area is becoming a popular place for people in the LGBT community to retire. Regardless of where that retirement place may be, comes the need for awareness and sensitivity to the different needs of the LGBT population as they age. I’ve had the privilege of speaking to several groups of LGBT seniors in the Coachella Valley about the different options for long-term care available here.  And, these experiences have opened my eyes to the unique circumstances affecting people who, in many cases, have lived most of their lives in the closet or in fear of someone finding out they are gay.

            I’d like to share a story of a recent event. It really highlighted how different the experience is for LGBT seniors as they navigate the healthcare system, as well as the different care options as they age.

            Sally’s Story The story about Sally and the day we met her. She had just been released from the hospital after a recent fall and needed help with bathing and basic chores around the house. We are in the in-home senior care business, and Sally had just been referred to us. We were conducting an in-home assessment with her to determine the type of care she needed and to learn a little more about her so that we could match her with the appropriate caregiver. 

            During the assessment, we asked Sally about her support network. Did she live alone? Does she have friends or family in the area? Basic questions like that. That’s when Sally told us about Margaret. “Margaret,” she said, “was my business partner.” Margaret had just recently passed away, and Sally had no other support system except for a wonderful neighbor who did as much as she could to help. We later learned from Sally’s neighbor that Margaret and Sally had lived together for over 50 years. And, that Margaret was the love of Sally’s life. Our hearts sank.  

            Imagine not being able to live and love openly. This is not uncommon even today. Especially as LGBT seniors encounter the health care and long-term care system, we’ve heard and read many stories about LGBT seniors being mistreated by medical / care workers because of their sexual orientation. Many LGBT seniors don’t even tell their primary care doctor of their sexual orientation.

            A recent survey by the National Resource Center on LGBT Aging—which provides support and services to lesbian, gay, bisexual, and transgender elders—found that respondents were frequently mistreated by care-center staff, including cases of verbal and physical harassment, as well as the refusal of basic services.Some respondents reported being prayed for and warned they might “go to hell” for their sexual orientation or gender identity.

            With same-sex marriage legal nationwide and organizations such as The LGBT Aging Project, we should theoretically be living in a golden age for LGBT seniors. Yet the LGBT Aging Center’s survey found that only 22 percent of respondents felt they could be open about their sexual identities with health-care staff. Almost 90 percent predicted that staff members would discriminate based on their sexual orientations or gender identities. And 43 percent reported instances of mistreatment. Meanwhile, few elder-care providers have services directly targeted at helping them.

            Many who won the first civil rights victories for generations to come are now dying, prematurely, because they are reluctant to ask for help and have too few friends or family to care for them. 

            Breaking down barriers for LGBT Seniors. So, how do we address this issue? One of the things I discovered is that there are very few programs or services offered for medical and care professionals that create awareness of this issue. Sensitivity training and partnerships with local LGBT organizations that can shed light and give information and tools to help are missing. The aim must be to guard LGBT seniors against being forced back into the closet as they age. The documentary Gen Silent follows the stories of six LGBT senior citizens who must navigate the intricacies of a long-term care system that is unsupportive of LGBT individuals. They also have a wonderful training curriculum targeted at care facility staff, which allows them to get an understanding of what it’s like to age as an LGBT person. And, just how fearful they are of being discriminated against or mistreated.

            I will venture to say that most care providers and staff members would never knowingly discriminate against someone because of their sexual identity. But that doesn’t mean LGBT seniors feel like they can be themselves. There’s a difference between wanting to provide a safe environment and actually providing one. What we know about the whole field of cultural competency is that, unless I really understand the person I’m serving, I’m going to provide them with what I personally would like, or what I think they need.

            For example, a well-meaning staff member might accidentally make an LGBT elder uncomfortable by asking certain questions—about spouses, children, or grandchildren—that assume the resident is heterosexual. Instead, we should encourage people to ask, ‘Who are the important people in your life?’ Even using the word “partner” is more inclusive than using husband or wife. It doesn’t automatically assume the person is heterosexual.

            LGBT training for long-term care staff can really open their eyes to the experiences and needs of the LGBT community. The training provides language and terminology to help support and educate staff members who may be struggling with how to best care for LGBT residents. Although an increasing number of long-term care facilities throughout the country are doing more to reach out to LGBT seniors, significant progress is needed before this becomes a widespread practice.

            Unfortunately, because so many LGBT elders are not comfortable being out, aging service providers often do not realize that they are serving this population and do not recognize that they may need to change their policies and practices to become more LGBT-inclusive.

            A Word From Senior Living Options of the Desert Your health and well-being are important in being able to care for those you love.You can reduce some of the stress by utilizing a free assisted living placement service like Senior Living Options of the Desert. They can guide you through the process and save you hours and hours of time researching the best options for you

            Leann Dale and Senior Living Options of the Desert have been in the Wellness Village since October 2018. PRO has received glowing responses from the families we’ve referred by phone or through the Wellness Village. We are proud and honored to have them in the Wellness Village. Visit them at http://www.parkinsonsresource.org/the-wellness-village/directory/senior-living-options/ Or call them at 760-322-0322.

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Parkinson's Resource Organization
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Palm Desert, CA 92260

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Updated: August 16, 2017